Hello :)

Hello new friends! My name is Graham and I just got diagnosed with OCD in December. I’m 21 years old and a music student at a prestigious conservatory in New York City. This is my OCD story. I have had OCD like symptoms since a very young age, for example, at age 3 I thought I would die if I left the house without a bottle of water, and refused to do so for almost 7 years, and I had countless sensory issues with food and clothing. However, around age 12, the thoughts began to become increasingly horrible. Violent intrusive images, urges to yell obscenities at people, overall intense fear of hurting other people emotionally or physically occupied my brain for hours a day. Additionally, I began to have intense contamination fears - obsessive hand washing, (although not nearly as bad as many people’s) having to carry hand sanitizer everywhere I went, and even worse, as I began to grow body hair, that was as “unclean” as it could get to me. I *had* to rid my body of it. These thoughts then began to plague my performances as well - I would obsessively worry about a certain thing, and it would ruin the whole experience for me, no matter how well I pulled through. As I also was trying to come to terms with my sexuality, (I’m gay) my brain produced tons of sexual intrusive images of both men and women, leaving me lost and confused as to what I actually was. I did not dare search what my thoughts meant. I thought for sure doing so would lead me to be put on a FBI watch list, inform me I was clinically insane, or something along those lines. One day in late October, I was on my commute home from school. This commute is an hour each way on crowded public transportation - between contamination and harm OCD, you can imagine how this experience goes for me every day. For 30 minutes, my brain thought of everything horrible I could do to the person next to me. Strangle them, stab them, rape them, call them racial slurs, rip their hair out. It was so overwhelming that by the time they walked off the train I thought I was going to faint from the panic I felt. I decided enough was enough and googled what I was feeling, which lead me to discover this subset of pure O OCD, which I knew nothing about. A friend of mine was diagnosed when we were 15, and I assumed it just meant obsessive without compulsive, and didn’t look into it whatsoever. I began to see a counselor at my school, and he sent me to the psychiatrist through the school who diagnosed me with OCD. Almost immediately after my diagnosis, my grandfather fell ill. I couldn’t bear to tell my parents while we were dealing with that. He ended up passing away a little less than a month later. This has been so beyond hard on my entire family. It’s been a little over a month now, and as more things have gone wrong for my mom - her company being hacked, getting in a car wreck (she’s totally fine other than whiplash) - I haven’t been able to bring myself to discuss with them. I feel as though I will be the straw that breaks the camel’s back. But I know I need to tell them. Hopefully it will happen as soon as possible...but it’s plaguing my mind a lot. If anyone can offer words of advice on what to do, I would appreciate it greatly. Thanks for reading. That’s my story. I hope to meet more wonderful humans who understand what I go through - have a wonderful day all! :)

Hi everyone. First time here. I suffer from Contamination OCD. I have a good support group in friends, family, and my boyfriend, but I have not met anyone else with OCD and I needed to reach out to others to find help. I first got OCD when I was 17 (I am now 33) and was able to go into remission, but COVID brought it back. I was struggling at work (which was outside with the public). I found a therapist and she wrote me a doctor’s note suggesting I be allowed to work from home. My work was not accommodating at all and only offered me FMLA leave, so I took it as my only option and eventually got on Short Term Disability. The whole process took forever and was incredibly stressful. My leave was supposed to be a time of healing and it just made my OCD symptoms worse. My employer basically treated me as though I was trying to get out of work and proved to me that though they talk about the importance of mental health, they don’t take mental health seriously. I ended up having to leave my job “involuntarily due to health reasons” as they would not grant an extension nor let me return with any restrictions/accommodations. My therapist seemed good at first, but it became clear that she wasn’t really helping me. She would often use our sessions to vent about the insurance company and in one session, she basically called me a hopeless case and kept saying “I don’t know. I am concerned. I don’t know how you are going to be able to function” and threw out the word hospitalization, though she did backtrack on that one. I struggle everyday. I am worried that something from outside of the home touched something clean and is now contaminated. I need help working through this. I am constantly looking for reassurance, question if things are clean, wash my hands, use too many disinfectant wipes, and take showers upwards of 50-60 mins. I feel like my mind is being taken over by my OCD, I’m losing time, and it’s straining my relationship. For anyone who is struggling with contamination OCD brought on by COVID - any tips? My therapist never gave me anything specific to work on with this - to help me focus on something else. I am in the process of finding another therapist, but until then - any help would be greatly appreciated. Thank you!

Hi there! I was diagnosed with OCD when I was about 17 but never really understood it. I never knew there were so many subtypes of OCD. There are things that I do that I knew were OCD related like intrusive thoughts, excessive counting, and excessive organization. I used to take medication for it but I was young and didn’t think I needed it so I stopped taking it. As of lately, I’ve been going through a lot of stress and anxiety. I was already flirting with the idea of therapy but felt I had a good handle on life and told myself I could get myself through most issues, but lately I’ve even stressed and overwhelmed so I finally decided to make an appointment. In my therapy research I began doing more OCD research as well and realized that a lot of my life centers around OCD. I always thought it was just anxiety or feeling unsure about myself but after doing this research I’m starting to think my OCD is a lot worse than I thought it was. Sometimes I write an email at work and read it over several times to make sure I didn’t make a mistake, every night before bed I check several times that the stove/oven are off and that the doors are locked because I’m afraid my family and I will die overnight, I’ve come to learn that the counting makes me comfortable and that my cleaning and organizational preferences aren’t just “quirky”, I’ve learned that avoidance is a symptom of OCD which has also affected my work, when my loved ones are sleeping I always check to see that they’re still breathing, I reread directions several times to make sure I don’t miss anything or make a mistake, I press the lock button on my car several times even if I’ve already heard the beep, unread notifications on my phone make me anxious because I’m worried someone is trying to tell me bad news or someone is threatening me. The list goes on. I’m definitely interested in seeking more treatment and learning coping skills but I’m afraid it will change me as a person. I like who I am, what if I manage my organization skills and then I become too messy or I stop checking directions or things I wrote and I make too many mistakes, etc. I think I have to keep reminding myself that treatment will make me more comfortable in my own body and mind and that it is definitely a good choice and a step in the right direction. I really didn’t expect this post to be this long 😅 but getting all of this off my chest feels good! I’m open to any advice and/or words of encouragement. Thank you for your time